A Chocolate Donut

December 21, 2007


Filed under: CPAP, fibromyalgia, health, life, rant, sleep — Wizus @ 12:28 am

In the last 16 months I have had 5 sinus infections..the only sinus problems I have ever had in my entire life.  I have been achy and sick, moody and tired, with itchy, watery eyes, stuffy nose and headaches.  My doctor told me it is from allergies, funny thing is, I am not allergic to anything that I know of.  In all my 42 years I have never had hay fever or any reaction to foods.  If I am going to need to use nose spray everyday just so I can breathe, then I want to know what am I allergic to.  So off to the specialist I went.

Allergy testing is kind of fun.  They draw boxes on your back and then prick each section with a different substance.  It doesn’t hurt and kind of tickles on the ribs.  The first test were all negative so I went back 2 weeks later for another round of tests with the same negative results. Then I had 5 tubes of blood drawn to test for various food sensitivities and that all came back negative too. So what is causing all these problems with my nose? I get tested for something else…mold.  All sorts of mold.  Twenty pin pricks worth and more blood tests!  Can you guess what I found out?  Yes, I am very sensitive to mold and fungi.  All sorts and kinds…ringworm, athlete’s foot, the stuff that grows on food and the kind that can show up in the bathroom. 

Talk about a lightbulb moment!  I have been living in my house for only 18 months.  I had the first sinus infection a few months after moving in, then one every 3-4 months.  I think I keep a clean home but the house is 20 years old.  We do a little investigating and we find mold in the walls! In the ceiling! 

I tell you, I am actually relieved.  I know it sounds crazy but all I wanted was to know what was causing my sinus problem and how to fix it.  It is not as bad as it sounds because we had already made our plans to remodel our home.  We have blueprints and a building permit, we just needed a nudge to stop the procrastination.  We moved out of the house (yes! moved! just wait till I show you what we are doing to our house!) and I am doing so much better…so much so that I do not use the cpap any longer!  No more swollen sinuses! 

I am so glad I insisted on finding out what type of allergy I have.  Maybe if I had lived with hay fever all my life I would have settled for the generic “you have allergies” diagnosis and never known I am so sensitive to mold.  I would have used the sprays and antihistamines everyday and just lived with it.  I would have blamed the headaches and flu-like achiness on fibromyalgia when it wasn’t that at all.  Now that I know the culprit I can deal with it!  


November 20, 2007

I’m useless today

Filed under: family, fibromyalgia, health, life, rant, sleep — Wizus @ 2:52 pm

I don’t know why I want to do nothing.  I am not tired, I am not in any pain or discomfort, I just don’t want to do anything.  I have a list 2 pages long in my notebook (damn that notebook!) but I cannot motivate myself into doing any of it  😦  I hate it when I get stuck in a funk that won’t let me be productive. 

Yesterday I managed to get a few things done that I didn’t want to do…all of which involved going into Walmart.  I am lucky that my local store has 1) a branch of my Dad’s bank  2) a mail center  3) groceries and 4) a pharmacy.  I feel like I accomplished a lot in one stop because that took a few hours…yes hours.  What is amazing about this store is, if I had had more time, I could have also gotten an eye exam, my hair cut and had our family’s portrait taken for out greeting cards!  Bummer, they are still on my to-do list.

I have a love/hate relationship with Walmart…I like the convenience of the store, but I find it weird that I am never greeted by a “Greeter”.  Even when my kids were small and I needed help with the cart the “Greeters” would ignore me.  No one believes it until they walk into a store with me…then, as if on cue, the “Greeter” will turn to talk with whomever happens to be behind them at the time.  If I have a return I have to ask them for one of those stickers they like to put on incoming merchandise because they will just let me go on in without stopping me.  Hubby and my friends are amazed.  I asked them if I have an unconcious “Don’t talk to me, bitch!” scowl on my face that scares the greeters away, but they promise me I don’t.  I’ll chalk it up to being one of my *gifts*, I am “Suzi, the invisible Walmart shopper!” 

Three days before Thanksgiving and I survived the Walmart parking lot,  being ignored by the “Greeter”, the business of taking Dad’s death certificate to the bank and straightening out a social security mess, mailing life insurance information to ungrateful brothers, buying a few fresh food items for dinner (for the remainder of this week, I advise only go into a grocery store if it is an emergency!) and made it through a check out line a mile long…so what is my problem today?  I just want to veg.  I want ignore my responsibilties, maybe turn on the TV to see what poor sap Dr. Phil is going humilate today.  


November 7, 2007

CPAP is here!

Filed under: CPAP, fibromyalgia, health, life, sleep — Wizus @ 7:25 pm

My Continuous Positive Airway Pressure machine arrived today!  I have mixed feelings about wearing an unflattering piece of headgear and being hooked up to a machine all night.  On the one hand, it is ugly and not very comfortable…but on the other I don’t want to rob my body of the oxygen it needs. 

When the airway is blocked and breathing stops during sleep, you are being momentarily choked or asphyxiated, and the sudden drop in oxygen level causes carbon dioxide levels in the blood to rise. The body tries to protect itself from harm by making the heart work harder to move the remaining oxygenated blood through the body. So, your heart rate increases too. ~respironics.com

The results from my first sleep study showed I had a mild sleep apnea with  AHI 11 and  oxygen saturation of 92%.  My doctor told me that I didn’t have any instances where I would miss a breath, but that I have very shallow breathing…I’ll take that as a good thing as the whole ‘stop breathing in your sleep’ thing is very scary!  Most people with only mild sleep apnea can get away with using a mouthguard that would help keep the airway open.  Since I take medications that cause drowsiness my doctor is afraid my throat muscles could become too relaxed which would make it more difficult to breathe.  So, he sent me in for a second sleep test to try out the CPAP machine. 

I slept much better during the 2nd study than I did at the 1st, mostly because of the Rx I take that help me sleep.  Plus, the second time around I felt more at ease since I knew what to expect.  I was able to try out the different types of masks available for the CPAP machine and I picked one that just goes under the nose (there is one that covers the whole nose and one that cover the mouth and nose).   I think the one I picked works the best for me because the pressure was more direct into my nose and with my sinuses giving me so many problems lately I finally felt like I was breathing “right” again.

I really have high hopes that I will wake up feeling much better than I have been!

August 2, 2007

Good night?

Filed under: CPAP, fibro, fibromyalgia, FMS, health, life, sleep — Wizus @ 3:55 pm

My doctor had me participate in a sleep study last night. This is where you go to a sleep “lab”, you get hooked up to a million sensors, the tech tucks you in and then goes to another room where he can watch you on a video monitor. Needless to say, I did not get much sleep last night.  😛

Tonight I get to start on a new medication, which ironically is the stuff I was going to test in the Rx study. The dr. says it is better that I am not in the study because he can prescribe a better dose for me, and I know I am not getting the placebo. He wrote a letter to my insurance co. and they are going to cover the costs even though the drug hasn’t been approved for treating fibro.

I won’t know what the results of the sleep study are until I hear from the dr, but I hope this med will have me feeling better very soon.

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